Trisomy 18 is a chromosomal abnormality, instead of the normal 2 number 18 chromosomes there are three, which causes severe medical complications. It is not hereditary and it happens about 1 in every 3000 births. I learned a lot about this condition at www.trisomy18.org, and there is a section called Legacy Pages under Get Support that was very helpful to me.
I'm scared about delivery, there is so much uncertainty. Thankfully I have a good support system, and on Monday I'm going to meet Tracy a social worker at the hospital who is going to help us through this. I'm due November 28th, so we are just waiting and enjoying Rosalie Anne all we can, while we can.
I want to focus on the good things that have happened so far. It is interesting how things happen, I had missed a screening that could have caught this early enough that I could have terminated the pregnancy instead I found out at my 8 month check up. Looking back (and although I'm very scared about what is up ahead) I'm glad that it happened this way. I have enjoyed my pregnancy from day 1, I've never felt better. I have enjoyed decorating the nursery and shopping for baby stuff. I enjoy feeling her move and bonding with her every day. I just hope I'm feeling this strong when I deliver.
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